When Jordan and Emma’s aunt was diagnosed with cancer in her thyroid gland, tests showed that the cancer - Multiple Endocrine Neoplasia - was not only very rare but it was also genetic. As a result their mum was tested and also diagnosed with the condition, which meant that Jordan and Emma had a 50% chance of inheriting it too. They were both tested and to everyone’s disbelief they both tested positive!
Multiple Endocrine Neoplasia (MEN) is a rare cancer syndrome caused by a gene mutation. It greatly increases the risk of tumours in the body and these tumours can be either malignant (cancerous) or benign (non cancerous).
Jordan and Emma’s thyroids both showed signs of cancer and they needed surgery immediately. They were admitted simultaneously and had five and six hour operations to remove their thyroids and the cancer. They were in hospital for 8-10 days and mum and dad stayed with them until they were allowed to come home.
Sadly, the condition can never be cured. It is slow growing but also very aggressive. The children now take daily medication and have tests in hospital every 16-20 weeks so that they can find any new tumours quickly and make sure the cancer doesn't spread. They will also be admitted for special screenings every 12 months for the rest of their lives.
Jordan and Emma are so very brave and try to cope with all the hurdles that MEN throws at them.
Since the children’s diagnosis, dad has been forced out of work to care for the whole family full time. As a result they have very little money to live on and they are struggling financially.
With your help, our Care Grants project can offer a financial cushion for families like Jordan and Emma’s.
Click here to read about some of the other children we have helped.
Multiple Endocrine Neoplasia (MEN) is a rare cancer syndrome caused by a gene mutation. It greatly increases the risk of tumours in the body and these tumours can be either malignant (cancerous) or benign (non cancerous).
Jordan and Emma’s thyroids both showed signs of cancer and they needed surgery immediately. They were admitted simultaneously and had five and six hour operations to remove their thyroids and the cancer. They were in hospital for 8-10 days and mum and dad stayed with them until they were allowed to come home.
Sadly, the condition can never be cured. It is slow growing but also very aggressive. The children now take daily medication and have tests in hospital every 16-20 weeks so that they can find any new tumours quickly and make sure the cancer doesn't spread. They will also be admitted for special screenings every 12 months for the rest of their lives.
Jordan and Emma are so very brave and try to cope with all the hurdles that MEN throws at them.
Since the children’s diagnosis, dad has been forced out of work to care for the whole family full time. As a result they have very little money to live on and they are struggling financially.
With your help, our Care Grants project can offer a financial cushion for families like Jordan and Emma’s.
Click here to read about some of the other children we have helped.
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