This is Harry’s journey, as told by his mum, Carly...
“Harry was not quite himself for around two months prior to diagnosis. He wasn't eating a lot, he was restless at night, he became very clingy and seemed tired. I took him to the doctor only to be told it is more than likely a virus. That Christmas, he wasn't interested in his new toys and by the new year his tummy looked bigger and no longer in proportion.
I took him back to the doctor on 2nd January and he was referred to our local hospital for further investigation. I was immediately worried but tried to reassure myself that it couldn't be anything serious as he stopped crying as soon as I picked him up. After various tests and scans, we were invited into a room with a box of tissues on the table. We immediately knew it wasn't going to be good news. We were told they had found a 16cm tumour growing in Harry's tummy! I immediately blamed myself. How did I miss a tumour the size of a ball growing inside my little boy? We felt numb, lost and scared of the journey ahead of us.
At first Harry went downhill. He slept a lot and when he was awake he cried in pain. But thankfully, a few weeks later he began to improve. He moved around the bed more easily and didn’t seem to be in so much discomfort. By the end of January he ventured out of his bed space and started to became a cheeky chap again, high fiving the nurses and marching up and down the corridors pushing a dolls pram. He is such a character and brings a smile to everyone’s face. We are so proud of our brave boy.
Since January 2018, Harry’s treatment has included:
Our world has been turned upside down. Isobel, who was 4 years old when Harry's journey began, has had to live with her grandparents while we are at hospital. I missed her 5th birthday, school plays, her first swimming lesson, learning to ride a bike and lots more. Isobel has coped remarkably well with the sudden change and we are so proud of her. Harry adores his big sister and we always look forward to going home to see her. She always greets Harry with a big hug!
Harry is nearing the end of his frontline treatment. We thought we would feel excited about this, but instead we are fearful. Neuroblastoma has a high chance of relapse and if a relapse was to happen less than one in ten survive.”
Harry’s family are trying to raise £239,000 to access Bivalent vaccination in New York that has been showing promising signs of reducing the chance of relapse, giving Harry the best chance at living cancer free.
In addition, Harry’s dad Ali, is self-employed, so has been working hard throughout Harry's treatment to make sure the bills continue to get paid. Unfortunately bills do not stop because your child has cancer!