Evelyn was born in January 2012 with the umbilical cord wrapped twice around her neck causing suffocation and trauma. This subsequently led to many other complications and Evie was soon diagnosed with severe brain damage, Cerebral Palsy and a movement disorder, as well as Retinoblastoma (cancer) in both eyes for which her tiny body had to undergo six sessions of chemotherapy in the hope of shrinking the tumours. Learning basic life skills including the simple concept of controlled movement will be a huge challenge for Evie and she will continue to require high levels of specialist support for the future. Now that Evie is home, mum, Aimey, is caring for Evie full time, which is no easy task considering that Evie needs such high levels of care and spends most of the day and night crying. Aimey is in desperate need of a Respite Carer to help to look after Evie so we are now fundraising to provide a carer for several days and two nights per week. This will give Aimey a little time to rest each week enabling her to give Evie the extensive care and attention that she constantly needs for the rest of the time.
James was diagnosed with Pituitary Germinoma four years ago at the age of 11 and is still receiving treatment now at the age of 15. The Pituitary Germinoma has caused brain tumours to grow and affect the pituitary gland which produces many essential hormones. This means that along with many other secondary conditions, James will never go through puberty. At present, James is receiving extensive treatment from Great Ormond Street Hospital and Addenbrooke’s Hospital as well as locally. The overwhelming costs of travelling to and from appointments, from where they live in Norfolk, has left the family struggling to keep their heads above water in an already heartbreaking situation. The Lennox is fundraising to provide the family with ongoing financial support so they can concentrate all their time and energy where it is needed most – looking after James and keeping up with his brothers and sisters!